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bubbles Bearz by Ilze
Canberra
Posts: 391

Thankyou all so very much for your messages of encouragement and all your prayers, because I really needed those, as it keeps me going!   Jane, thankyou so much for the Get Well Prayer!  I have set it as my background/wallpaper so that I can read it each time I get discouraged!

I had a bit of good news.  On Monday I went for a battery of blood tests.  All the test results came back clear so it is a bit of a relief.  I am seing a specialist again on Friday this week, so hopefully I will be able to get some answers.

Lots of hugs and love to you all!!  :hug:  :hug:  :hug:  :hug:  :hug:  :hug:
Ilze

Bearalive Bearalive
S.California
Posts: 791
Website

That is good news Ilze! I will keep on praying that they find what is wrong and you start feeling like yourself soon! I am Catholic and I do belive in San Jude I am praying to him for your prot recuperation. bear_flower  Hang in there.
BIG hugs.
Gladys

Jellybelly Bears Jellybelly Bears
Australia
Posts: 4,066

oh Ilze bear_sad  I can so relate to so many things.  Where do I begin.....
Firstly, sorry for not writing asap, I've been like you and severly limited in time from being unwell so you understand, we get back when we can, sometimes a whole week passes for me and I can do nothing, I just pick up again as if no time has passed and have to foget all the inbetween bad stuff...sometimes i can't believe the whole world has moved on a whole 7 days!  bear_wacko  lol

Chrissi is so right, go to as many doctors you can until you are happy.  I went to I think 4 rheumatologists before I hit on a winner.  One thing that is hard when you are an unwell woman is being believed....what you say having credit.  with this doctor i need not explain, just say, this hurts and he believes me!  so the right doctor, not ony for medications but being understood is so improtant. 

I'm not really 'in' on all the pneumonia stuff but i hope you can sort it out.  something i thought of as i was reading your message was that sometimes when the body goes through stress other things can begin or come out of hiding.  i was wondering if your pain is widespread?  Have they looked into fibromyalgia?  maybe the pneumonia has triggered other problems....no meaning to scare you, but the sooner you get a handle on things the sooner you can be treated, learn and also help yourself which is a lot of what you have to do. doctors only see you for short periods...sometimes we can actually learn and help them to treat us.

i'm sorry about your marriage too.  most of my life was spent in that situation so i can relate as well...i have often wondered how much of the stress and living under constant strain and fear can affect us...whether it makes us ill like this.  all i can say is never give up....things happen for a reason and although terrible things are terrible, you come out being stronger and, ridiculously, happier than you were, more at peace and knowing whats important in life.  its weird.  but rememeber, you will get through it...you have loads of people who care, look at this post.  and I had to smile when you talked about your friend sending you a parcel, I too have been at breaking point a lot the last few weeks...actually asking if I can take going through this anymore...and in the post arrives a prayer shawl from one of my dear friends/collectors...on another day when i had cried my eyes out, a card through snail mail....sometimes these little things are what we hold onto....higher powers are at work to see that we get through!  I had posts here that friends cared, but I wasn't online as I was too ill....so there I had something to get me through reach me.

one other aside...complaining...i was always someone who said i am not bad, others are worse, kids are sick and all of that....I should not be complaining...even buying a wheel chair the other week i told the sales guy that i didn't really need it (lol)  there is a difference between being an attention grabbing complainer and a genuine needing comfort "sharer".  I tell you, it helps me so much to hear others are going through it rough too.  Thats why I write now...to share, help...I still can't get my head around accepting that I am this sick.  I still think that I am not.  I think this is good really coz it means hope is still there.  anyway, sharing is so important.  i can't do much with my life but sharing and helping through that, or responding like this...is one thing that i can still do, I know it is of improtance and makes me feel useful.  so thankyou for sharing and also letting me rant a reply to you ;)

lots of love and i hope this is all okay to post here...i can't help "talking" haha bear_whistle  If you ever need to write I'm here  :hug:  :hug:  :hug:  :hug:
and I'm glad your tests came back okay!

Shelli SHELLI MAKES
Chico, California
Posts: 9,939
Website

Shelli Retired Help Advisor, Banner Sponsor

I don't have the debilitating personal experiences some have mentioned, that you're experiencing, Ilze... but I have watched pain and medical uncertainty wreak havoc on the sidelines of my life.  My sister Paulette spent the last several years in severe pain, and deteriorating, after a diagnosis of stage 4 ovarian cancer/  I can say with complete confidence that it was FAR more difficult for her to cope with her constant -- and constantly changing -- pain[/b] than it was for her to cope with the idea that she was dying and there was no way to avoid it. 

And to a much smaller degree than you're experiencing, some years ago I battled constant tendon pain (until I had corrective surgery.)  Everyone knew exactly what my problem was, and I had shots to control the sticking and clicking which alleviated some of what hurt.   But it wasn't a 100% fix, and the continual burning and locking of my wrist made me one very irritable woman for much of that period of my life.  It's very hard to be otherwise when pain is relentlessly ever-present, and as I said, I'm talking about something that was relatively minor and known... not something involved with my respiratory system and undiagnosed.  I can only imagine how much worse it would have been, in such a case.

I really feel deeply for anyone suffering physically, especially someone with generalized anxiety to cope with as well.  That includes you, Ilze, among others.

I'm keeping everything crossed for a definitive diagnosis and an improvement in your comfort, both physical and emotional, just as soon as possible.

Take care, hun.   :hug:

rufnut Rufnut Teddy's
Victoria Australia
Posts: 2,725

Ilze, sorry to hear about your health, keep searching for your health solutions, don't give up :hug:  :hug:  :hug:  :hug:

Marlys Waggle Bears
So Cal Desert
Posts: 4,089

Ilze, take care of yourself. Stress can do a lot of damage to our body. You're in my thoughts and I hope you're feeling better soon.

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